So Larry and I went down to Little Rock on the 16th if December to get Rilee's hearing checked by a Sedated ABR. And for all you who don't know what that is, it is: "An Auditory Brainstem Response (ABR) test is a sleep EEG hearing test which h shows the softest sounds your child's ears can detect at various pitches." --Children's Hospital Website. We found out that Rilee has no hearing in her right ear and hardly any hearing in her left ear so what that means from here on out is that we have to go to several different doctors to do MRI's and CTScan's to determine if the nerves in her ear are developed properly and once we do that, we can pursue the cochlear implant and what that is: "A cochlear implant (CI) is a surgically implanted electronic device that provides a sense of sound to a person who is profoundly deaf or severely hard of hearing. The cochlear implant is often referred to as a bionic ear." --Wikipedia.com. We are very confident that Rilee will catch up in no time before she has to start school.
As for the rest of the year we found out we were prengnat on the 13th of September with our second child and we have had a little excitement with that one as well.
The other little one is Six inches long this week and about eight ounces in weight and is the size of a "Large" mango and is now covered in a protective substance called vernix. Arms and legs are finally in proportion, neurons are now connected between the brain and muscles, and cartilage throughout the body is turning to bone. As I told you two weeks ago, the "cyst" that was detected when we were about 10 weeks pregnant had several different possibilities that were scary and well scary. The doctor gave us so many possibilities on what it could have been either down syndrome or trisomy 18 and what that is:
There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features.
The Allens (Larry, Tricia, Rilee and #2)
Trisomy 18 occurs in 1 in 3,000 live births. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher. Trisomy 18 affects individuals of all ethnic backgrounds.
Symptoms
Trisomy 18 severely affects all organ systems of the body. Symptoms may include:- Nervous system and brain - mental retardation and delayed development, high muscle tone,seizures, and physical malformations such as brain defects
- Head and face - small head (microcephaly), small eyes, wide-set eyes, small lower jaw
- Heart - congenital heart defects such as ventricular septal defect
- Bones - severe growth retardation, clenched hands with 2nd and 5th fingers on top of the others, and other defects of the hands and feet
- Malformations of the digestive tract, the urinary tract, and genitals
And that same day we took a test to determine if the babies blood had the extra chromosome and it didn't so we were very blessed to find out that piece of information!! When we went to our appointment on the 14th of December and the baby was developed more so we could see where the "cyst" was on the baby and it was on the baby's kidney. And to shed light on what that exactly means it is: "The prognosis for children with simple renal cysts is excellent. Although data from long‑term studies is limited, it appears that most cysts do not change in size or cause problems with renal function. In most instances, if a firm diagnosis of simple cyst has been made, further investigation is not necessary Barring complication, children with simple renal cysts can be managed with regular periodic monitoring" so of course we were more relieved that it wasn't as serious as down syndrome or trisomy 18.
Other than all that information things have been pretty "normal". Larry, Rilee, #2 and I will be moving to Oregon on the 31st of December. Tuesday was my last day at Chick-Fil-A and it was filled with mixed emotion I was very excited because we were embarking in a new chapter in our lives and sad because Chick-Fil-A was the best job I ever had!
We have been so blessed to have had wonderful friends this last 8 months who have helped us when we needed them and all the prayers that we have requested this last year they have truly made our lives more complete. We will be keeping in touch as we get settled in Oregon, get Rilee's surgery and welcome the other little Allen. May God Bless your Christmas and your New Year.
All our Love
The Allens (Larry, Tricia, Rilee and #2)
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